Table 1

Recommended follow-up schedule and diagnostic testing for CDH survivors

Patient age at clinic visit
Discharge to 1 yearAges 1–2 yearsAges 2–5yearsAges 6–21 years
Appointment scheduleEvery 3 monthsEvery 6 monthsAnnuallyEvery 2–3 years
History and physical examination—includes scoliosis and chest wall deformity examination
Chest X-ray
V/Q scan*
PFTs5 yearsAs indicated
EchocardiogramAs indicatedAs indicatedAs indicated
Audiology3 years6 years
Upper GI study or pH probeAs indicated based on symptoms
Cardiopulmonary exercise testingAs indicated
Neurodevelopmental assessment†As indicated based on screening
Brain imaging (MRI/CT)ECMO survivors
Altitude testing evaluationPending travel screen
  • The shading indicates whether the intervention is recommended. Green signifies recommended and yellow signifies as indicated per patient.

  • *V/Q scan repeated if perfusion or ventilation to affected lung is <30%.

  • †Consideration of formal testing with Bayley III or IV or WPPSI-IV.

  • CDH, congenital diaphragmatic hernia; ECMO, extracorporeal membrane oxygenation; GI, gastrointestinal; PFT, pulmonary function test; V/Q, ventilation perfusion; WPPSI, Wechsler Preschool and Primary Scale of Intelligence.