Table 1

Participant characteristics

Participant characteristics: infant			Participant characteristics: parent
Presentation (%)	Acute	96	Depravation index (1–10) (%)	1–5	54
	Elective	4		>5	42
	Elective	4		Unknown	4
Number of siblings (%)	0	38	Mother’s age (years) (%)	<20	8
	1	33		20–25	8
	2	4		26–30	21
	3+	21		31–40	33
	Unknown	4		40+	17
Multiple morbidity (%)	Yes	71	Single parent (%)	Yes	13
	No	29		No	83
	No	29		Unknown	4
Antenatal diagnosis (%)	Yes	25	Marital status (%)	Single	21
	No	75		Cohabiting	38
				Married	33
				Separated/divorced	0
				Unknown	8
Length of stay (days) (%)	1–14	8	Ethnicity (%)	White British	67
	15–31	42		Other European	17
	>31	50		African	4
				Asian	4
				Unknown	8
Care at another hospital (%)	Yes	79	First language (%)	English	76
	No	21		Other European	17
	No	21		Other	8
Care in another department within trust (%)	Yes	25	Highest education level (%)	None	4%
	No	75		Some high school	13
				High school	17
				College	17
				Bachelor’s degree	13
				Master’s degree	8
				Unknown	29
Highest level of care (%)	Ward	13	Internet at home (%)	Yes	58
	HDU	8		No	13
	NICU/PICU	79		Unknown	29
Specialty (%)	Upper GI/thoracic	12.5	Disability (%)	Yes	0
	Lower GI	87.5		No	67
	Lower GI	87.5		Unknown	33
Gestation at birth (weeks) (%)	24–27	33	Travel time to hospital (min) (%)	<20	21
	28–31	4		20–39	4
	32–35	21		40–59	38
	36+	42		60+	8
	36+	42		Unknown	33
Gestation at presentation (weeks) (%)	24–27	4	IVF (%)	Yes	21
	28–31	21		No	60
	32–35	21		Unknown	29
	36+	54
Current gestation (weeks) (%)	24–27	0	Multiple pregnancy (%)	Yes	8
	28–31	4		No	88
	32–35	4		Unknown	4
	36+	83
	Unknown	8

GI, gastrointestinal; HDU, high-dependency unit; IVF, In vitro fertilization; NICU, neonatal intensive care unit; PICU, paediatric intensive care unit.